My Complaint to the GMC about the PACE authors

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STOP PRESS!

There is now a petition where you can show your support for this Complaint simply by clicking. Please do support me in this way - the more letters and the more clicks on the petition we get, the better! Thank you.

DATE - 15 June 2018 - 8400 clicks of support - PLEASE KEEP CLICKING!

Running total of number of letters of support so far submitted

Comment made by one of our supporters
Comment made by one of our supporters
Comment made by one of our supporters, a participant in the PACE trial
Comment made by one of our supporters
Comment made by one of our supporters
Comment made by one of our supporters
Comment made by one of our supporters
Comment made by one of our supporters
Comment made by one of our supporters
Comment made by one of our supporters
Comment made by one of our supporters

DATE - 25 March 2018 - 210 letters submitted - THE DEADLINE FOR SUBMISSION [25 March 2018] HAS NOW PASSED as copied to Dr Myhill's GMC Complaint Team (cr648@hotmail.co.uk)

How you can help

  • If you are able to write a bespoke letter specific to your circumstances please read the information below in sections 4-14
  • If you are not able to do this, please download the 'Simplified Letter' below. Then all you need to do is to put the date and your name and address at the top and then go down to the paragraph in red font and simply delete what is not relevant to you and keep in what is relevant to you. Then please send the email/letter to the addresses as noted on the Simplified Letter.

Simplified Letter

Note - where to send your letters of support

The GMC has made it more difficult to access email addresses in order to find where to complain! One is directed to a standard form of complaint. This standard form is rather restrictive and so I decided to complain direct to the Chair of the GMC - Sir Terence Stephenson. I would ask please that you send your letters of support to him too. His address details are as below

1--email it to Sir Terence Stephenson (TStephenson@gmc-uk.org) - Sir Terence Stephenson is the Chair of the GMC

2--if you can, please send your letter by post too, here is the address –
Sir Terence Stephenson,
General Medical Council,
Fitness to Practise Directorate,
3 Hardman Street,
Manchester,
M3 3AW.

3—if you feel comfortable with doing so, please can you copy your letter of support to Dr Myhill at Dr Myhill's GMC Complaint Team (cr648@hotmail.co.uk)

Introduction

On 14th January 2018, I complained to the Chair of the GMC, Sir Terence Stephenson, about the authors of the PACE study. PACE study.

In this letter of complaint I stated that:

I shall be informing CFS/ME sufferers through social media and other means to get in touch with the GMC directly, by way of example of the harm done by the PACE authors, and to confirm the seriousness of the injuries they have suffered. I shall ask patients to report directly to the GMC in the following categories:

*Those who have suffered damage as a result of CBT.
*Those who have suffered damage as a result of GET.
*Those who have been denied disability benefits because the physical nature of their disease has not been properly recognised and/or they have been told they have a psychological condition.
*Those who have been denied industrial compensation for their disease because the physical nature of their disease has not been properly recognised and/or they have been told they have a psychological condition.
*Those who have been denied referral or funding for referral to a physician specialising in the biomedical approach to treating CFS/ME.''

This list is not intended to be exhaustive and any harm in any manner caused by PACE should be reported to the GMC - see the section directly below. These 'letters of support' from sufferers are key to this Complaint.

Below you will find the full text of my Complaint letter, available to download. Also you will find a template letter of support available to download. The template letter will need to be personalised as noted in the text of the letter. Please do use your own style of letter if you prefer.

  • It would be very helpful if you could send a copy of your letters of support to Dr Myhill's GMC Complaint Team (cr648@hotmail.co.uk) so that we can keep a complete file of all such letters of complaint.

Blog Post by Sally Burch

Please do also see this excellent Blog post by Sally Burch which includes extracts from her personal letter of support. This may help you to compose your own letter. Thank you Sally!

Sally Burch's Blog Post on her PACE Complaint letter of support

Examples of how you may have been harmed by PACE

Jacqueline Miller of the 'Support for Followers of Dr Myhill's Protocol Facebook group' (Support for followers of Dr Myhill's protocol Facebook Group) has submitted a letter with the following points included.

  • I have suffered mental distress as a result of PACE. For example, benefit applications, and assessments were more stressful because my illness was considered psychological
  • Visits to doctors, and consultants, and NHS emergency departments are more stressful because my illness is considered psychological.
  • I am denied treatment because my illness is considered psychological
  • I am accused of wasting time, and lying, and treated with contempt and suspicion because my illness is considered psychological
  • My word and experience is dismissed because my illness is considered psychological, and I am labelled as ‘mentally ill’.
  • I am labelled as a delusional patient because of negative connotations implied by doctors and NHS staff.
  • It appears all my other health issues, and concerns are now considered psychological, and therefore dismissed as imaginary
  • I experienced extreme trauma, HARM & LOSS because my illness was considered psychological
  • I was targeted, and harmed after complaining, because my illness was considered psychological
  • I am denied compensation for my disease because the physical nature of it has not been properly recognised and/or told I have a psychological condition
  • It is my belief PACE WAS AT THE ROOT OF THESE PROBLEMS
  • I WAS HARMED BY GET AND PACE RECOMMENDED GET AND SO PACE AUTHORS ARE AT FAULT BECAUSE I WAS RECOMMENDED GET BECAUSE OF PACE and denied funding for referral to a physician specialising in the biomedical approach to treating CFS/ME. Note: Funding which was already agreed, and put into place was later withdrawn, and denied.

This is a great example of the kind of DISTRESS that has been caused by PACE. These points do not necessarily 'fit' easily within the broad 5 categories listed above.

So, please do think about ANY harm that has been caused to you by PACE - in my experience most ME sufferers have been harmed in some way.

Harm and distress caused by PACE to children

If you feel able [and we know that this is an extremely difficult area where there can be coercion to say the least] then please do send letters to the GMC concerning children, supporting Dr Myhill's Complaint regarding the PACE authors. This could be on any of the broad areas of harm and distress as listed above but also may include harm done to children being forced to go to school and being subject to child protection plans.

See also False Allegations of Child Abuse in Cases of Childhood Myalgic Encephalomyelitis (ME)

PACE has created a general background environment of harm and neglect

A key point is -- consider the general background environment that PACE has created surrounding ME. This has meant that many forms of 'indirect' harm and distress are more likely.

Examples may include:

  • your illness being ignored
  • having your symptoms being dismissed
  • being thought of as 'problem patient'
  • having to endure disbelief from the medical profession
  • being dealt with in an off-hand or even aggressive manner

Text of my Complaint Letter

Please find the full text of my Complaint here as below:

Letter of Complaint to GMC about the PACE authors

Text of Template Letter of support

Please do make any adjustments you wish to improve upon this or submit your own letter entirely. This template is for guidance only and will need personalising where stated in the text of the letter - noted in red.

Please find the full text of the Template letter of support here as below:

Template Letter of support - Word document to enable easy amendments and editing.

Text of Social Media post regarding this complaint

Here is the full text of the Social Media post announcing this Complaint:

*** DR MYHILL HAS COMPLAINED TO THE GMC ABOUT THE PACE AUTHORS ***

*** SHE WANTS YOUR HELP ***

PLEASE SHARE THIS POST AS WIDELY AS POSSIBLE. THIS COMPLAINT IS IN THE PUBLIC DOMAIN.

The GMC is the UK doctor’s regulatory authority – the General Medical Council. Patient support is sought from all patients who feel they have been harmed by PACE. You do not have to be a UK citizen.

PACE is the study ‘Comparison of adaptive pacing therapy, cognitive behaviour therapy, graded exercise therapy, and specialist medical care for chronic fatigue syndrome (PACE): a randomised trial. (2011)’, published in The Lancet.

SEVEN other medical doctors are supporting this complaint but wish to remain anonymous - they are concerned about the impact of such “whistle-blowing” on their future careers within and without the NHS.

The letter of complaint is attached. The complaint is one of Fraud, namely:

--fraud by false representation
--fraud by failing to disclose information
--fraud by abuse of position

There are also numerous breaches of:

--GMC Guidance on Good Medical Practice
--GMC Guidance on Good Practice in Research
--GMC Guidance on Consent to Research

Dr Myhill is asking for your help.

Please read the letter of complaint and also the ‘PACE patient support letter’.

HELPING DR MYHILL

We want people who have been harmed by PACE to write in support of this complaint. You could have been harmed in any of these ways and possibly others too:

•suffered damage (including physical, mental or emotional distress) as a result of CBT.
•suffered damage (including physical mental or emotional distress) as a result of GET.
•been denied disability benefits because the physical nature of your disease has not been properly recognised and/or you have been told you have a psychological condition.
•have been denied industrial compensation for your disease because the physical nature of your disease has not been properly recognised and/or you have been told you have a psychological condition.
•have been denied referral or funding for referral to a physician specialising in the biomedical approach to treating CFS/ME.

You do NOT have to have been diagnosed or have fallen ill with CFS/ME after PACE was published [March 2011] to support this complaint.

So, for example if you were diagnosed/fell ill in 1980, but have recently been refused benefits as a result of PACE [for example, for not engaging in CBT or because your illness was considered psychological) or maybe you have suffered mental distress as a result of PACE (for example, benefit applications were more stressful because your illness was considered psychological) then you CAN support this complaint. It will help our case to have as many support letters as possible.

If you feel you have even the smallest ‘case’ for inclusion then please do submit a letter of support – it is incumbent on the GMC to prove that you have not been so affected, not for you to prove that you have!

Please do email if you are in doubt or need help phrasing why you have been harmed by PACE. Please be patient – we will respond as quickly as possible. Dr Myhill's GMC Complaint Team (cr648@hotmail.co.uk)'

Just put your reasons for supporting this complaint in the relevant section in the attached template letter ‘PACE patient support letter’ and fill in any other portions that need filling in [all marked in red] and then:

1--email it to Sir Terence Stephenson (TStephenson@gmc-uk.org) - Sir Terence Stephenson is the Chair of the GMC

2--if you can, please send your letter by post too, here is the address –
Sir Terence Stephenson
General Medical Council
Fitness to Practise Directorate
3 Hardman Street
Manchester,
M3 3AW.

3—if you feel comfortable with doing so, please can you copy your letter of support to Dr Myhill at Dr Myhill's GMC Complaint Team (cr648@hotmail.co.uk)

Tie in with MAIMES - Medical Abuse In ME Sufferers

I am also running a campaign to get a Public Inquiry into the abuse of ME sufferers - please see Medical Abuse in ME Sufferers for details of how you can get involved in this too! There are many external links on this page showing the evidence for the debunking of PACE.

Related Article

External Link

Downloadable documents

Signed By

BAGs Sarah

A friend has named me Balls and Guts Sarah.



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