Medical Abuse In ME Sufferers
MAIMES Update 16 December 2019 - 26 MPs signed up and 163 MPs adopted!
Mission Statement
- MAIMES aims to get a Public Inquiry into the Abuse of ME Sufferers
Update 12 December 2019 UK General Election Result
The results of this election have meant that the number of signed up MPs has fallen from 40 to 26, with 14 of 'our' MAIMES MP's either having stepped down or having been replaced by a new MP as a result of the election results - ie voted out!
The summary is attached as below.
- The first column is the OLD MP [who was signed up to MAIMES]
- The middle column is the relevant constituency
- The last column is the NEW MP [not signed up to MAIMES]
We are looking for constituents of said constituencies to approach the NEW MPs and mention the fact that the previous MP for their constituency had signed up to MAIMES and could they please also sign up.
What can you do to help?
- EITHER 1- follow up on an adopted MP and try to get them to sign up to the MAIMES campaign [see list below of adopted MPs] [get friends or family to help by all means]
- OR 2- If your MP isn't adopted yet, adopt them, by email or in person [see list of MPs below to check that your MP isn't adopted yet] [get friends or family to help by all means]
- Just email helen@doctormyhill.co.uk (Helen ) and she will tell you what to do
What is MAIMES?
WOULD YOU LIKE A UK PUBLIC INQUIRY INTO THE ABUSE OF ME SUFFERERS OVER DECADES OF NEGLECT?
WOULD YOU LIKE A FREE COPY OF DR MYHILL'S NEW CFS/ME BOOK TO GIVE TO YOUR MP?
If you would like such a Public Inquiry, then please read on.
Definitions
- An Adopted MP = this MP has been contacted or is due to be contacted by a MAIMES volunteer. An adopted MP has not yet signed up to the campaign. MAIMES volunteers can still arrange to meet these MPs and try to convince them. See below for more details.
- A Signed Up MP = this MP has signed up to the MAIMES campaign to have a Public Inquiry into the abuse of ME sufferers
What to do
- This is a campaign to get MPs to sign slips that will be used to demand a Public Inquiry into the abuse of ME sufferers over the last few decades. This campaign is called MAIMES. [the slip calls for a Public Inquiry]
- The first goal is to sign up as many MPs as possible to the aims of MAIMEs. Once we have sufficient MPs on side we will approach the Secretary of Health to demand a Public Inquiry
- We first need “adopters” who are preferably physically able (see comments below) to attend their MPs’ surgery and also who feel that they can explain the issues as detailed below in as convincing a manner as possible! Please - we don't want anyone to feel pressurised in any way to do this. Our goal is to make people better not worsen their condition by attempting something they are not capable of. This is why we also suggest family, friends or carers getting involved where this may be possible - see below also.
- If you can be such an “adopter” please email your details and your MP’s name and constituency details to Helen helen@doctormyhill.co.uk (Helen )
- Helen will then send the adopter [ie YOU!] a free copy of Dr Myhill’s new book second edition: “CFS/ME – it’s mitochondria not hypochondria”. Your chosen MP becomes 'Adopted' at this stage
- Attend your local MPs surgery, give him/her the copy of the book, show them Chapter 1 and try to convince to them to sign the slip!
- If you are successful, please scan the slip and return it to Helen (helen@doctormyhill.co.uk (Helen ) ). At this point your chosen MP becomes 'Signed Up'
- If you cannot convince your MP to sign the slip, please leave them with the PDF COPY OF DETAILED MAIMES LETTER. Please also continue to contact your adopted MP and try to convince them via sheer persistence!
- We prefer the adopter to be able to visit physically but if you are too ill to attend then please email Helen and ask to become an email adopter
- If your constituency MP has already been adopted by someone else, then you can still try and convince them - use the information below and either visit your MP or email them. The more people who contact their constituency MPs in this way, the better!
- Also if you want to go in groups to visit your constituency MPs then please do - this will also improve things as it will mean that there is less chance of brain fog getting in the way of persuasion - two heads are better than one!
- Or if you feel that friends and family or your carer or anyone could act on your behalf then that would be great too!
Confirmation Slip for MP to sign
HERE IS THE SLIP THAT WE ASK YOU TO GET SIGNED BY YOUR ADOPTED MP TO SUPPORT MAIMES' AIM OF HAVING A PUBLIC INQUIRY INTO THE MEDICAL ABUSE OF ME SUFFERERS:
DATE …………………………………………………………………………
I am the MP for ……………………………………………………………
NAME …………………………………………………………………………
I agree with the aims of Campaign MAIMEs to establish that:
- ME is a physical disease with primarily physical causes.
- That this should be properly reflected by NICE Guidelines and by NHS treatments available to ME sufferers
- That this should be properly reflected by compensation, disability and pension benefits.
- That we require a Government funded, cross party Public Inquiry to establish the above.
- SIGNED
- Date
- Witnessed by
For you to print off -- PDF COPY OF MAIMES SLIP
Convincing your MP
- TELL YOUR MP HOW MANY OTHER MPs HAVE BEEN ADOPTED AND HOW MANY HAVE SIGNED UP. Presently we have 163 adopted and 26 signed up MPs
- Show them the information in this pdf file PDF COPY OF MAIMES INTRODUCTION AS ABOVE
- Use the links below in the External Links section.
- Explain why this is of Public Importance - number of people affected is 250,000 per NHS figures - see here NHS page on CFS
- Explain that the issues surrounding CFS/ME are very complex and that ONLY a Public Inquiry can investigate all these issues satisfactorily.
- Try to find local issues surrounding CFS/ME - the MP must act for their own constituents - look up local support groups.
- Emphasise the impact on children - see this paper Long Term Sickness Absence due to ME/CFS in UK Schools: An Epidemiological Study With Medical and Educational Implications and Special problems of children with myalgic encephalomyelitis/chronic fatigue syndrome
- Please see the links in the "External Links" section below which contain more useful evidence and campaign tools.
- If the MP doesn't sign, even after repeated follow ups as suggested in the section ACTION above, then ask them to put down in writing WHY they will not sign. This can then be used against them at a future date!
- Please keep Helen up to date with all developments even in cases where your MP refuses to sign up.
- Please forward all communication to Helen, even if it is 'negative'. Refusals are important too!
MAIMES Update 16 December 2019 - Signed Up MPs
We now have 26 MPs signed up to MAIMES. These MPs, who should be congratulated are:
- ANTONIAZZI Tonia
- CHALK Alex
- DABY Janet
- DAVEY Edward
- DAY Martyn
- DONELAN Michelle
- GOODWILL Robert
- HAIGH Louise
- HOWARTH Sir George
- HOYLE Sir Lindsay
- HUDDLESTON Nigel
- LAKE Ben
- LAING Eleanor
- LAVERY Ian
- LEWELL-BUCK Emma
- LYNCH Holly
- McGUINN Conor
- NEWLANDS Gavin
- SHANNON Jim
- SHEERMAN Barry
- STEWART Bob
- STRINGER Graham
- WARBURTON David
- WEST Catherine
- WHATELY Helen
- WRAGG William
MAIMES Update 16 December 2019 - adopted and signed up MPs as at 5 September 2019
Those in red and 'starred' are "signed up" MPs and those in black are "adopted" MPs
MP | Constituency |
---|---|
ALI Rushanara | Bow & Bethnal Green |
**ANTONIAZZI Tonia** | **Gower** |
ARGAR Edward | Charnwood |
BACON Richard | South Norfolk |
BADENOCH Keric | Saffron Walden |
BALDWIN Harriet | West Worcestershire |
BARCLAY Stephen | North East Cambridgeshire |
BARRON Kevin | Rother Valley |
BLACK Mhairi | Paisley & Renfrewshire |
BLACKFORD Ian | Ross, Skye and Lochaber |
BLACKMAN Kirsty | Aberdeen North |
BLOMFIELD Paul | Sheffield Central |
BRADLEY Karen | Staffordshire Moorlands |
BRINE Steve | Winchester & Chandlers Ford |
BROCK Deidre | Edinburgh, North & Leith |
BROWN Lyn | West Ham |
BROWN Nick | Newcastle upon Tyne East |
BUCKLAND Robert | Swindon South |
BURGHART Alex | Brentwood & Onga |
BUTLER Dawn | Brent Central |
CADBURY Ruth | Brentford & Isleworth |
CAIRNS Alun | Vale of Glamorgan |
CARDEN Dan | Liverpool Walton |
CARTLIDGE James | South Suffolk |
CAUFIELD Maria | Lewes |
**CHALK Alex** | **Cheltenham** |
CHAMPION Sarah | Rotherham |
CHAPMAN Douglas | Dunfermline & West Fife |
CHERRY Joanna | Edinburgh South West |
CHURCHILL Jo | Bury St Edmunds |
CLARKE Simon | Middlesborough South & East Cleveland |
COURTS Robert | Witney |
CRAUSBY Sir David | Bolton North East |
CREAGH Mary | Wakefield |
CRYER John | Leyton & Wanstead |
**DABY Janet** | **Lewisham East** |
**DAVEY Edward** | **Kingston and Surbiton** |
DAVIES Glyn | Montgomeryshire |
**DAY Martyn** | **Linthigow & East Falkirk** |
DE PIERO Gloria | Ashfield |
DEBONAIRE Thangham | Bristol West |
DJANOGLY Jonathan | Huntingdon |
DODDS Anneliese | Oxford East |
**DONELAN Michelle** | **Chippenham** |
DUNCAN Sir Alan | Rutland and Melton |
DUNNE Philip | Ludlow |
EAGLE Maria | Liverpool |
EVANS Chris | Caerphilly |
EVENNETT David | Bexleyheath & Crayford |
FFYSH Marcus | Yeovil |
FRANCOIS Mark | Rayleigh & Wickford |
FRAZER Lucy | South East Cambridgeshire |
FREER Mike | Finchley and Golders Green |
GHANI Nusrat | Wealden |
GILDERNEW Michelle | Fermanagh & South Tyrone |
**GOODWILL Robert** | **Scarborough & Whitby** |
GOVE Michael | Surrey Heath |
GRADY Patrick | Glasgow North |
GRAHAM Luke | Ochil & South Perthshire |
GRANT Helen | Maidstone & The Weald |
GRANT Peter | Glenrothes & Central Fife |
GRAYLING Chris | Epsom & Ewell |
GREEN Chris | Bolton West and Atherton |
GREEN Damien | Ashford |
GREEN Kate | Stretford & Urmston |
GRIEVE Dominic | Beaconsfield |
GROGAN John | Keighley & Ilkley |
**HAIGH Louise** | **Sheffield Heeley** |
HALL Luke | Thornbury and Yale |
HAMMOND Stephen | Wimbledon |
HARDY Emma | Kingston upon Hull West and Hessle |
**HARRIS Carolyn** | **Swansea East** |
HOWARTH Sir George | Knowsley |
HAYES Helen | Dulwich & West Norwood (London) |
HAZZARD Chris | SDLP South Down |
HEALEY John | Wentworth |
HENDRICK Mark | Preston |
HENDRY Drew | Inverness, Nairn, Badenoch and Strathspey |
HERBERT Nic | Arundel & South Downs |
HOARE Simon | North Dorset |
HOBHOUSE Wera | Bath |
**HOYLE Sir Lindsay** | **Chorley** |
**HUDDLESTON Nigel** | **Mid Worcestershire** |
HUGHES Eddie | Walsall North |
HUNT Jeremy | South West Surrey |
HUSSAIN Imran | Bradford East |
JACK Alister | Dumfries and Galloway |
JAVID Sajid | Bromsgrove |
JENKIN Bernard | Harwich & North Essex |
JOHNSON Caroline | Sleaford & North Hykeham |
JONES Andrew | Harrogate |
JONES Darren | Bristol North West |
KEEGAN Gillian | Chichester & West Sussex |
KENNEDY Seema | South Ribble |
**LAING Eleanor** | **Epping Forest** |
**LAKE Ben** | **Ceredigion ** |
LAMONT John | Berwickshire, Roxburgh & Selkirk |
LATHAM Pauline | Mid Dernyshire |
**LAVERY Ian** | **Wansbeck** |
LEADSOM Andrea | South Northamptonshire |
LEE Karen | Lincoln |
LEE Philip | Bracknell |
LEIGH Sir Edward | Gainsborough |
**LEWELL-BUCK Emma** | **South Shields** |
LEWIS Clive | Norwich South |
LIDINGTON David | Aylesbury |
LITTLE-PENGELLY Emma | South Belfast |
LUCAS Caroline | Brighton Pavilion |
LUCAS Ian | Wrexham |
**LYNCH Holly** | **Halifax, West Yorkshire** |
LLOYD Stephen | Eastbourne |
MADDERS Justin | Ellesmere Port & Neston |
MAK Alan | Havant |
MANN Scott | North Cornwall |
MARSDEN Gordon | Blackpool, South |
MASKEY Paul | Belfast West |
MATHESON Christian | City of Chester |
MAY Theresa | Maidenhead |
McDONALD Stewart | Glasgow South |
**McGUINN Conor** | **St Helens** |
McMORRIN Anna | Cardiff North |
McNALLY John | Falkirk |
McPARTLAND Stephen | Stevenage |
MORDEN Jessica | Newport East |
MORGAN Nicky | Lougborough |
MORGAN Stephen | Portsmouth South |
MORTON Wendy | Aldridge/Brownhills |
MURRAY Ian | Edinburgh, South |
MURRAY Sheryl | South East Cornwall |
MURRISON Andrew | South East Wiltshire |
**NEWLANDS Gavin** | **Paisley & Renfrewshire North** |
NEWTON Sarah | Truro and Falmouth |
PATEL Pritti | Witham |
PENROSE John | Weston-Super-Mare |
PERKINS Toby | Chesterfield |
PIDCOCK Laura | North West Durham |
POULTER Dr Dan | Central Suffolk & North Ipswich |
POUND Steve | Ealing North |
POW Rebecca | Taunton Deane |
PRISK Mark | Hertford & Stortford |
QUIN Jeremy | Horsham |
REES-MOGG Jacob | North East Somerset |
REYNOLDS Emma | Wolverhampton North East |
RICHIE Margaret | SDLP South Down |
RODDA Matt | Reading East |
ROBINSON Geoffrey | Coventry North West |
ROBINSON Mary | Cheadle Hulme South |
ROWLEY Lee | North East Derbyshire |
RUANE Chris | Vale of Clwyd |
SAVILLE ROBERTS Liz | Dwyfor Meirionnydd |
SEELY Bob | Isle of Wight |
**SHANNON Jim** | **Strangford** |
**SHEERMAN Barry** | **Huddersfield** |
SHERRIFF Paula | Dewsbury, Mirfield, Denby Dale & Kirkburton |
SIDDIQ Tulip | Hampstead and Kilburn |
SKIDMORE Chris | Kingswood |
SKINNER Dennis | Bolsover |
SMITH Jeff | Manchester, Withington |
SMYTH Karin | Bristol South |
SOBEL Alex | Leeds North West |
SOUBRY Anna | Broxtowe |
**STEWART Bob** | **Beckenham** |
STEPHENSON Andrew | Pendle |
SUNAK Rishi | Richmond |
STONE Jamie | Caithness, Easter Ross, East Sutherland |
**STRINGER Graham** | **Blackley & Broughton** |
SWAYNE Desmon | New Forest West |
SWEENEY Paul | Glasgow North East |
THOMAS Derek | St Ives |
TREDINNICK David | Bosworth |
TREVELYAN Anne-Marie | Berwick upon Tweed |
TRUSS Liz | South West Norfolk |
VAZ Valerie | Walsall South |
VILLIERS Theresa | Chipping Barnet |
WALKER Charles | Broxbourne |
WALKER Robin | Worcester |
**WARBURTON David** | **Somerton & Frome** |
**WEST Catherine** | **Hornsey & Wood Green** |
**WHATELY Helen** | **Faversham and Mid Kent** |
WHITTINGDALE John | Maldon |
WIGGIN Bill | North Herefordshire |
WILLIAMS Hywel | Arfon |
**WRAGG William** | **Hazel Grove** |
WRIGHT Jeremy | Kenilworth & Southam |
ZAHAWI Nadhim | Stratford-Upon-Avon |
ZEICHNER Daniel | Cambridge |
Useful External Links
You may wish to print these off and show them to your MP:
- “Reporting of Harms Associated with Graded Exercise Therapy and Cognitive Behavioural Therapy in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome”
- “Can patients with chronic fatigue syndrome really recover after graded exercise or cognitive behavioural therapy? A critical commentary and preliminary re-analysis of the PACE trial”
- "Journal of Health Psychology - Special Issue: The PACE Trial"
- "Trial by Error: David Tuller's E-Mail Exchange With NICE Chief Executive"
- “Reporting of Harms Associated with Graded Exercise Therapy and Cognitive Behavioural Therapy in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome”
- “Can patients with chronic fatigue syndrome really recover after graded exercise or cognitive behavioural therapy? A critical commentary and preliminary re-analysis of the PACE trial”
- "Assessment of Individual PACE Trial Data: in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Cognitive Behavioral and Graded Exercise Therapy are Ineffective, Do Not Lead to Actual Recovery and Negative Outcomes may be Higher than Reported"
- "NHS page on CFS" - confirming the figure of 250,000 sufferers in the UK
- "Long Term Sickness Absence due to ME/CFS in UK Schools: An Epidemiological Study With Medical and Educational Implications"
- "An open letter to Psychological Medicine about “recovery” and the PACE trial" - Signed by Dr Myhill
- "Special problems of children with myalgic encephalomyelitis/chronic fatigue syndrome"
- "Getting it wrong on Chronic Fatigue Syndrome" - New York Times article on flaws in PACE trial
Other links:
- MAIMES SIMPLIFIED
- Dr Myhill's new book "Diagnosis and Treatment of Chronic Fatigue Syndrome and Myalgic Encephalitis" (2nd Edition)
- Hope for ME and Fibro Northern Ireland
- Life the Basic Manual YouTube Channel
PDF and Word copies of useful documents
- PDF COPY OF MAIMES SLIP
- PDF COPY OF MAIMES INTRODUCTION AS ABOVE
- PDF COPY OF DETAILED MAIMES LETTER
- WORD COPY OF DETAILED MAIMES LETTER - so you can make it more personal and better!
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